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What did we find out in 2018?

We collected 473 stories from across Wales; they highlighted incredibly positive experiences as well as negative experiences covering a range of services, settings and locations and reflected much that the Citizens' Jury heard in September 2018.  The 16 recommendations that came from the stories echoed many of those made by the Jurors, particularly around viewing people as partners in social care delivery, making more offers of support and information, making it easier to engage with social care, and improving the support provided to carers.

The Stories

Citizens' jury

The stories painted a mixed picture highlighting approaches that work well and those that need improvement.

Significant among the positive findings were how important people's connections are, be they with family, friends or a social care worker; how important it is to involve people in discussions about their or their loved one's care; and the extent to which very small actions can have a big impact.

Among the more negative findings, were that 75% of carers' experiences were negative; over 200 respondents felt that social care workers were the primary influencers in their story; and that 180 respondents felt they did not get what they needed, weren't listened to and did not have a choice in the experience they shared.

While there is much still to be found out and understood, the findings from 2018 suggest some straightforward improvements that could be made.

The Citizens' Jury

Citizens' jury

The Jurors produced 15 recommendations based on the information that was shared with them over three days from a variety of individuals from across the social care sector.

Their recommendations included that people approaching the social care system should receive support from an impartial, well-trained and knowledgeable key worker; that carers must be recognised, supported and valued as the vital assets they are; that co-production needs to be defined and embedded as a practice that everyone understands and that statutory bodies should provide clear information about their services that anyone can understand.

They also made recommendations abotu technology, tendering and commissioning processes and greater recognition for frontline workers.

Read the full report on our Resources page.

What happens next? 

Time credits

As part of our work in 2019/20 we will be sharing our findings with people and organisations across Wales.

We want to the findings from 2018, and 2019 as they are collated, to help inform discussions about social care, and to help inform progress within the sector.

We will be meeting with community groups, presenting at conferences and attending meetings with stakeholders to present and discuss our findings.

These findings will also inform our approach to collecting stories in 2019/20: we want to engage more with younger people, people from diverse backgrounds and older people, we want to hear more stories to add detail to what we know so far, and we'd like to hear from carers of all ages.

If you would like to know more about findings, have an event you'd like us to attend or want to know more about sharing stories please get in touch. 

 
Organisations

What recommendations did we make?

We made 16 recommendations in our final report in addition to the 15 that the Jurors had made in their report.  The recommendations from the stories included:

*Listen to what people say, and believe them.

*Discuss arrangements for meetings and appointments with the person being supported and agree a mutually suitable time and locations.

*Develop an approach to offering information, advice and support without people needing to ask.  Offer carers' assessments to carers.

* Provide individuals with a named point of contact they can reliably get in touch with.

While the complexity of the social care sector is undeniable, these recommendations (and others in the report) illustrate approaches which would support the sector to move closer to providing the best possible well-being outcomes for the people it supports.

 

 


 

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